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Alert
Adult Growth Hormone Deficiency
Aware
The Organization
AGHDaware is an organization which has been created in 2006 to:
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Raise awareness in Australia of Adult Growth Hormone Deficiency (AGHD).
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Develop a Brisbane based support group for people suffering from AGHD, and
their carers.
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Perform a needs analysis of patients suffering from AGHD.
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Provide hope and support for Australian AGHD sufferers, by working towards
providing the resources they need to move forward in an overwhelming climate
of despair, where the treatment they need can be prescribed, but is often
financially unavailable due to current lack of government subsidy.
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Provide advocacy for AGHD patients to influence medical, scientific,
political, commercial, academic, social and legal institutions to foster
change required to enhance quality of life for the AGHD community.
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Foster co-operative links with existing organizations which offer support
for patients with brain tumours in general, and pituitary dysfunction in
particular, to ensure specialist knowledge related to AGHD is widely
disseminated and that resources created for AGHD adults can be widely
accessed.
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Provide a spotlight on moves towards application for Pharmaceutical Benefits
Scheme subsidisation of GH treatment for AGHD.
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Create mechanisms by which completed research, which has potential to
advance knowledge of the AGHD condition, is published and made available to
the medical, political and commercial bodies which can use it optimally in
the case for subsidisation of treatment for AGHD.
Our
thanks to Professor Mike Wallis & Dr Caryl Wallis of the Biochemistry Department, School of Life Sciences, University of Sussex, Falmer, Brighton BN1 9QG, UK
...... for the great graphic in the our headings.. |
